“Mom's a bit different”: The challenges of first-time mothers with cerebral palsy in caring for their children from birth until age three

Abstract

This qualitative study examines childcare challenges and adaptive strategies among first-time Czech mothers with cerebral palsy (CP) in caring for children aged 0-3. Data obtained from ten semi-structured interviews were analyzed using selected procedures of situational analysis. The results were structured around three major themes: (1) The decision to become a mother and preparation for childcare tasks; (2) Challenges in childcare and adopted childcare strategies; (3) Social support received to manage childcare challenges. Along with findings related to the women with CP preparing themselves for the maternal role and childcare tasks, i.e. by attending a prenatal course to learn a suitable hand grip to safety hold their baby or to choose a suitable pram, the participants identified a number of practical childcare challenges they encountered postpartum. The first-time mothers initially tended to delegate challenging childcare tasks, such as lifting and carrying the newborn child, bathing and dressing or changing nappies, to family members or friends, with this support contributing to gradual development of the women's childcare methods to become an independent caregiver. Our findings underline the importance of sharing the lived experiences of mothers with CP with professional communities as well as the general public through formal education programs and informal community outreach.